Give HOPE to the XLH Community!

Help The XLH Network, Inc continue our mission of promoting awareness and continued research, advocating for our patients, and educating clinicians so that proper and early diagnosis occurs.

$10,417 raised

$20,000 goal

/ 150

Share:

Giving to The XLH Network, Inc can make a huge impact on families affected by XLH!

Welcome to the XLH Network, INC.

Please give today to give HOPE for a brighter future.

The XLH Network, INC gives HOPE by:

  • Hosting events for XLH families to create community and support
  • Offering resources to help individuals and their families understand and cope with XLH
  • Promoting awareness, education and research
  • Encouraging an early, accurate diagnosis followed by well-managed treatment

In 2018, we received hope for a brighter future with our first FDA approved treatment for X-linked Hypophosphatemia. We also hosted our first Symposium on Hypophosphatemia and saw our largest turnout for our XLH Day patient event. In 2019, The XLH Network, INC will continue to fight to give HOPE to the XLH community by promoting awareness and continued research, advocating for our patients, and educating clinicians so that proper and early diagnosis occurs. We will also host 3 regional meetups in 2019 in order to provide resources and support to the XLH community.

You can help The XLH Network, INC give HOPE! Please consider supporting the efforts of The XLH Network, INC by making a gift and sharing this page with others.

Every gift makes a difference!

Thank you for your support!

Our Supporters