Rare Disease Day is February 28, 2018 and we are asking everyone to help spread awareness on that day by becoming a Rare Disease Day Champion. We have developed a toolkit full of ideas on how to make the biggest impact on Rare Disease Day. We are asking you to also consider becoming a champion and helping us to raise funds on that day.
2018 may be life changing for the XLH community. Raising funds is more important than ever in making sure that we have all available resources to help the XLH community.
Getting started is easy to do, and it's fun. We'll even give you all the tools you'll need to make a difference. With your help, I know we can reach our campaign goal by 2018-02-28 and provide hope for the future.
When you create a personal fundraiser page today for THE XLH NETWORK INC, you'll be helping us accomplish our mission of supporting physicians and other providers of medical care for better diagnosis and treatment; creating resources and a community for affected individuals and their families so they can understand and cope with the complications of the disease; and fostering the search for a cure.
Won't you help make a difference for those living with XLH!?
Thanks for helping to make 2018 life changing!