Welcome to my GivingTuesday page. I am proud to serve as a GivingTuesday Ambassador for The XLH Network, Inc.
The Network is the only worldwide organization dedicated to those living with XLH. It has made a tremendous difference for me and my family. It provides educational information and events, patient support, works to educate clinicians, and advocates on behalf of patients worldwide.
2018 promises to be life changing for those living with XLH. For the first time, we have the prospect of a brand new treatment that will address the underlying cause of XLH. This will dramatically improve quality of life for those living with XLH. It will also require, more than ever, The Network to continue advocating for patients, educating clinicians so that proper and early diagnosis occurs, and also ensuring that patients have access to needed resources. That is why I am asking for your support. It is a critical time for those living with XLH and we cannot do this alone.
Please consider supporting my GivingTuesday efforts by making a gift and sharing this page with others. Every gift makes a difference.
From the bottom of my heart, thank you for your support!