Thank you for visiting our XLH fundraising page! The XLH Network, Inc., is hosting its first ever 5K Run/Walk, and the Inmans will all be running. This run will take place immediately following XLH Day, an event that has made a huge difference in our lives. And we hope you will help us help families like ours!
XLH (x-linked hypophosphatemia) is a rare, chronic, and progressive disorder that affects 1 in 20,000 people. And the XLH Network, Inc. is a patient-led organization that serves as a worldwide support network for those living with XLH, their family members, and the clinical professionals working in the field. It is the only organization focused solely on advocating for families with XLH and related hypophosphatemic disorders.
Our goal is to raise as much as we can to help the Network accomplish its mission. We hope you will join our efforts by making a tax-deductible donation and helping to spread the word!